Living with Cardiofaciocutaneous Syndrome: One Family’s Story

As a parent, from the moment your child enters the world, you strive to provide the best life for them. There are always obstacles to overcome in day-to-day life. However, when a parent learns their child is medically fragile, these day-to-day activities become additionally challenging. Due to medical research and advances, many of these children can live at home, but not without significant challenges to overcome.

During this week’s episode of Family Comes First™, we meet Jenny and Darin Iacobelli. Jenny and Darin’s daughter, Nola was diagnosed with Cardiofaciocutaneous Syndrome at just 1 year old. The disease is very rare—only 400 children in the world have been diagnosed. The Iacobelli’s are able to maintain their family and lifestyle despite the stress and challenges. They are truly role models to families everywhere.

Also joining us is Kim N. Christian, Esq., a partner at Russo Law Group, P.C. Kim shares the importance of planning for your child with special needs through legal documents such as a special needs trust.

Join us for this inspirational show, “Miracles Among Us” on Telecare Monday, June 13, 2016, at 1:30 pm.

Family Comes First™ episodes will also air on Wednesdays at 9:30 am & 10:30 pm, and Thursdays at 1:30 pm.

Family Comes First™ airs exclusively on Telecare TV – Cablevision Channels 29 and 137, Time Warner channels 106 (Manhattan), 471 (Queens) or Verizon FiOS TV Channel 296. For more on Family Comes First™, visit our Family Comes First website.